Monthly Archives: December 2015

Berrymans 2015 round up!ย 

Well it’s Christmas time and time to reflect on 2015, what a year it has been a year of many many challenges but wonderful moments along the way! 

  

The year started with a turbulent and uncertain time, when Reedy was very poorly, I had to stop working in my fledgling but fairly successful childminding business, our marriage looked like it was beyond repair, our house in Exeter on the market and sadly we lost a much loved Granny and great Granny. 
In March Reedys treatment started to take a new turn, where surgery started to become our only option to help save our darling boy from suffering from epilepsy that was drug resistant and becoming increasingly difficult to control and treat. So we spent a week in BRistol childrens hospital for extensive testing. 

  

Thankfully it didn’t phase him much! 

Meanwhile, we moved north for a fresh start with Ryan joining our family again. We knew we had something very special, we sought support and are better than we ever have been.   

In April and May we were slowly drip fed results from BRI, Reed had continued to go down hill fast at worst having upwards of 15 clusters of seizures a day. Logistics and proximity to the professionals meant 6 weeks after moving north we pulled out of house sale and headed south! 

Which proved the most logical step, Ryan got offered an amazing opportunity for work and continues to excel and is well regarded within his team. 

Darling Annabelle reunited with her friends and settled quickly back into nursery with familiar and understanding staff. 

A few more hospitalisations for reedy and the full details of the proposed surgery, a posterior disconnection would be conducted. 

Over the summer we managed to go on holiday to north Devon with nanny n grandad and get away in our newly acquired Bell tent! 

   
 August saw us celebrate Annabelle turning 3 and me 30! 

  

Reedy first surgery date was released and cancelled. 

To maintain a level of normality I had been attending a few beauty treatment courses and subsequently launched “lavender beauty” in September and I am slowly building a client base conducting treatments including massage, facials, manicures and pedicures. 

Ryan leads our cheering leading squad for the Exeter Chiefs where we try and attend at least some home games, for him to support and for me to let my hair down and enjoy the view ๐Ÿ˜‰! Ryan tries to stay fit in his “gym shed” and I try and keep fit pounding the pavement and this year training for the great west run. Although Ryan had to step in last minute we raised ยฃ500+ for a local children’s charity. 
In September the day we had been dreading finally arrived, Reedy underwent brain surgery. A 4-5 hour operation that resulted in us getting him back 15 hours later! the hardest days of our lives. More info on the procedure and his progress is documented on our blog http://www.reedysclimb.wordpress.com

  

Luckily, despite the distance, nanny and grandad were never far away to help. (Thank you!)

The day’s proceeding the surgery were relentless, fraught and difficult to maintain a ‘normal’ luckily nurse Annabelle was on hand to provide joy and laughter! 

  

We have all been recovering from, what we think was a very successful procedure, children back to nursery, Ryan to work and me growing my little business and growing the latest addition to our gang! 
Berryman number 3, all being well will be here in June. We are all so pleased and excited in anticipation of the newest addition. 

  

Just as we were relaxing into life improving as we head towards 2016, my darling Nanna passed away. Which has left us all but especially Mum completely devastated. 
We close the year having celebrated Reedys 2nd Birthday and Annabelle always being by his side. 

  
They are both truly unique and like the rest of our family have shown grit, determination and courage this year and we have managed to find light, love and laughter throughout which we take with us into 2016.
We wish you the very best Christmas and prosperous new year. 

All our love Rachel, Ryan, Annabelle, Reedy and bump.

Christmas is coming!!ย 

Eeeekkk Christmas is 10 days away and we have been busy…

   
These little tinks have been great at helping with putting up the tree, just not certain how many times the decorations will be removed before I put them away for next year!! 

  
  
Reedy reindeer met Santa and getting the hang of opening presents! 

Reed appears to be making extraordinary progress and it’s very exciting to see him learning and doing new things. ๐Ÿ’œ 

We are going for a check up tomorrow at Bristol and we are excited for them to see just how well he is doing and if they have a plan for the future. Will just have to wait and see. Eeek it will be emotional I think as its been 3 months since we seen them! X x

Lows, highs and ready to plateau!ย 

It’s been 11 weeks since Reedy underwent extensive brain surgery and it has been a roller coaster of emotions and experiences. 

Nothing can prepare you for what life launches at you and the variable speed of emotions you might feel. 

11 weeks ago Reed was drug resistant and seizuring daily, we are not sure that we have seen any seizures since then, which is utterly amazing and kind of surreal. 

They are so great at bouncing back, I on the other hand have struggled to come to terms with it. Which may sound silly but as we come towards the 12 week mark the anxiety of seizures returning is getting greater, if I remember right the longest we have ever been is 12 weeks seizure free. Ever move, every virus, every fall, everything you think “it’s back”. 

There have been some tremendous highs over the last few weeks including Reedy learning at an astronomical rate… He knows where his tummy is, he knows how to sit on the step to put shoes on, he knows to go to the table if he is hungry! He has started to make some new noises, he dances all the time and the relationship between Annabelle and him is growing stronger and closer: 

  
We have also found out that Reedy and Annabelle are going to become big brother and sister to our much loved baby expected in June. Which is both amazing and scary at the same time, we are heading for genetic testing this afternoon to find out a bit more about Reedys condition and if there is any likelihood that it is genetic to help prepare ourselves for any eventuality when our precious baby arrives. We are almost 100% sure the cortical dysphasia was a one off, unrelated condition, through the genetic testing we will know for sure. 

We have also raised significant funds for Honeylands Childrens centre and received a great deal of support from Acorns day nursery.

The next milestone in Reeds revovery will be clarified at an appointment with the surgical team later this month. 

So all in all a number of lows and highs we are ready to end 2015 and start 2016 on a plateau with less drama and less loop the loops…. Here’s hoping. ๐Ÿ˜๐Ÿ’œ๐Ÿ˜๐Ÿ’œ