Well it’s Christmas time and time to reflect on 2015, what a year it has been a year of many many challenges but wonderful moments along the way!
The year started with a turbulent and uncertain time, when Reedy was very poorly, I had to stop working in my fledgling but fairly successful childminding business, our marriage looked like it was beyond repair, our house in Exeter on the market and sadly we lost a much loved Granny and great Granny.
In March Reedys treatment started to take a new turn, where surgery started to become our only option to help save our darling boy from suffering from epilepsy that was drug resistant and becoming increasingly difficult to control and treat. So we spent a week in BRistol childrens hospital for extensive testing.
Thankfully it didn’t phase him much!
Meanwhile, we moved north for a fresh start with Ryan joining our family again. We knew we had something very special, we sought support and are better than we ever have been.
In April and May we were slowly drip fed results from BRI, Reed had continued to go down hill fast at worst having upwards of 15 clusters of seizures a day. Logistics and proximity to the professionals meant 6 weeks after moving north we pulled out of house sale and headed south!
Which proved the most logical step, Ryan got offered an amazing opportunity for work and continues to excel and is well regarded within his team.
Darling Annabelle reunited with her friends and settled quickly back into nursery with familiar and understanding staff.
A few more hospitalisations for reedy and the full details of the proposed surgery, a posterior disconnection would be conducted.
Over the summer we managed to go on holiday to north Devon with nanny n grandad and get away in our newly acquired Bell tent!
Reedy first surgery date was released and cancelled.
To maintain a level of normality I had been attending a few beauty treatment courses and subsequently launched “lavender beauty” in September and I am slowly building a client base conducting treatments including massage, facials, manicures and pedicures.
Ryan leads our cheering leading squad for the Exeter Chiefs where we try and attend at least some home games, for him to support and for me to let my hair down and enjoy the view 😉! Ryan tries to stay fit in his “gym shed” and I try and keep fit pounding the pavement and this year training for the great west run. Although Ryan had to step in last minute we raised £500+ for a local children’s charity.
In September the day we had been dreading finally arrived, Reedy underwent brain surgery. A 4-5 hour operation that resulted in us getting him back 15 hours later! the hardest days of our lives. More info on the procedure and his progress is documented on our blog http://www.reedysclimb.wordpress.com
Luckily, despite the distance, nanny and grandad were never far away to help. (Thank you!)
The day’s proceeding the surgery were relentless, fraught and difficult to maintain a ‘normal’ luckily nurse Annabelle was on hand to provide joy and laughter!
We have all been recovering from, what we think was a very successful procedure, children back to nursery, Ryan to work and me growing my little business and growing the latest addition to our gang!
Berryman number 3, all being well will be here in June. We are all so pleased and excited in anticipation of the newest addition.
Just as we were relaxing into life improving as we head towards 2016, my darling Nanna passed away. Which has left us all but especially Mum completely devastated.
We close the year having celebrated Reedys 2nd Birthday and Annabelle always being by his side.
They are both truly unique and like the rest of our family have shown grit, determination and courage this year and we have managed to find light, love and laughter throughout which we take with us into 2016.
We wish you the very best Christmas and prosperous new year.
All our love Rachel, Ryan, Annabelle, Reedy and bump.